Find the educational and advocacy support you need

Whether you’re looking for answers for you or your loved ones, want to connect with other people with non-small cell lung cancer, or need help getting the care you need, there are many organizations that offer useful information, networking, and other support services. Here is a list of just a few organizations dedicated to helping people who have cancer.

These resources are independent of Lilly; Lilly does not control the content.

EDUCATION

  • American Lung Association®/
    LUNG FORCE

    The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research. The Lung Association is committed to defeating lung cancer and supporting those affected by it. Through our strategic cause initiative, LUNG FORCE, we have three priorities: 1) Make lung cancer a cause that people care about—and act on; 2) Educate and empower patients and healthcare providers; and 3) Raise critical funds for lung cancer research.

    The American Lung Association offers a trove of educational resources designed to walk you and your loved ones through the lung cancer journey. Get lung cancer basics, hear stories from others affected by lung cancer, and learn how to get involved.

  • Bonnie J. Addario Lung Cancer Foundation

    The Bonnie J. Addario Lung Cancer Foundation (ALCF) is a nonprofit organization that actively works with physicians, organizations, and people affected by lung cancer. To reach our goal of making lung cancer a chronically managed disease by 2023, we empower and educate patients via patient services and programs, work with physicians via our Community Hospital Center of Excellence program, fund cutting-edge research, build strategic collaborations, and raise public awareness.

    The ALCF provides people who have cancer with a comprehensive handbook, "Navigating Lung Cancer, 360 Degrees of Hope," that includes the latest information in lung cancer education and research.

  • CancerCare®

    Founded in 1944, CancerCare is a national organization providing free professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. The organization's comprehensive services include counseling and support groups over the phone, online, and in person; educational workshops; publications; and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and worldleading cancer experts.

    CancerCare offers workshops, podcasts, Q&A sessions, and publications to help you and your loved ones better understand lung cancer and the treatment and support available to you.

    Lungcancer.org was founded in 1998 by CancerCare to be a source of support and information for lung cancer patients and their loved ones.

  • Cancer Support Community®

    The Cancer Support Community is a global nonprofit dedicated to providing support, education, and hope to people affected by cancer. The organization’s services are available free of charge through a network of professionally led, communitybased centers, hospitals, and community oncology practices, as well as online.

    Explore information and resources specific to nonsmall cell lung cancer.

  • Lung Cancer Alliance®

    Lung Cancer Alliance (LCA) is the leading and highest rated nonprofit organization dedicated to fighting lung cancer in the nation. Since 1995, they have played a critical role in every major advance – changing how we support, talk about, detect and treat the disease – and turning those impacted into survivors. Their mission is saving lives and advancing research by empowering those living with and at risk for lung cancer.

    LCA provides an overview of lung cancer, including lung cancer diagnoses, the different types of lung cancer, and the various stages of the disease.

  • LUNGevity®

    LUNGevity is focused on changing outcomes for people living with lung cancer through research, education, and support. LUNGevity strategically funds a robust portfolio of translational research to find lung cancer early and treat it more effectively. The organization also provides a community of empowerment, support, and hope for everyone affected by lung cancer through its extensive educational resources, online peertopeer support, and inperson survivorship programs.

    LUNGevity offers resources that cover different aspects of lung cancer, including a basic overview, reports from experts in the field, and the latest coverage in the developments of lung cancer.

    The LUNGevity Hope Summits are a way for you and your loved ones to connect with other people affected by lung cancer.

CAREGIVER SUPPORT

  • American Lung Association®/
    LUNG FORCE

    The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research. The Lung Association is committed to defeating lung cancer and supporting those affected by it. Through our strategic cause initiative, LUNG FORCE, we have three priorities: 1) Make lung cancer a cause that people care about—and act on; 2) Educate and empower patients and healthcare providers; and 3) Raise critical funds for lung cancer research.

    As a caregiver, it’s important to take care of yourself, as well as your loved one. The American Lung Association offers information about how best to take care of yourself, how to help your loved one with treatment, and how to plan for the future.

  • CancerCare®

    Founded in 1944, CancerCare is a national organization providing free professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. The organization's comprehensive services include counseling and support groups over the phone, online, and in person; educational workshops; publications; and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and worldleading cancer experts.

    The professional oncology social workers at CancerCare provide tips and advice for caregivers, including how you can help manage your loved one’s care, supporting your loved one emotionally, and caring for yourself.

  • Cancer Support Community®

    The Cancer Support Community is a global nonprofit dedicated to providing support, education, and hope to people affected by cancer. The organization’s services are available free of charge through a network of professionally led, communitybased centers, hospitals, and community oncology practices, as well as online.

    Dealing with a lung cancer diagnosis can be difficult for everyone involved, including family and friends. It can be an especially difficult conversation for children. There are resources and community support groups available to help.

  • LUNGevity®

    LUNGevity is focused on changing outcomes for people living with lung cancer through research, education, and support. LUNGevity strategically funds a robust portfolio of translational research to find lung cancer early and treat it more effectively. The organization also provides a community of empowerment, support, and hope for everyone affected by lung cancer through its extensive educational resources, online peertopeer support, and inperson survivorship programs.

    No matter what your questions, concerns, or needs are when it comes to your role as caregiver, LUNGevity offers tools and resources to help you along the way. Visit the Caregiver Resource Center for information specific to your needs.

COUNSELING AND SUPPORT

  • American Lung Association®/
    LUNG FORCE

    The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research. The Lung Association is committed to defeating lung cancer and supporting those affected by it. Through our strategic cause initiative, LUNG FORCE, we have three priorities: 1) Make lung cancer a cause that people care about—and act on; 2) Educate and empower patients and healthcare providers; and 3) Raise critical funds for lung cancer research.

    The American Lung Association offers resources for people who have cancer and their caregivers, including support groups and ways to plan your care.

  • Bonnie J. Addario Lung Cancer Foundation

    The Bonnie J. Addario Lung Cancer Foundation (ALCF) is a nonprofit organization that actively works with physicians, organizations, and people affected by lung cancer. To reach our goal of making lung cancer a chronically managed disease by 2023, we empower and educate patients via patient services and programs, work with physicians via our Community Hospital Center of Excellence program, fund cutting-edge research, build strategic collaborations, and raise public awareness.

    Navigate your lung cancer journey with the Hope app from ALCF, which allows you to watch educational videos, track important treatment journey information, and access the patient handbook. ALCF also offers informational sessions in person or through its webinar, “Lung Cancer Living Room,” which provides information on treatment, nutrition, advancements in the lung cancer field, and more.

  • Cancer Support Community®

    The Cancer Support Community is a global nonprofit dedicated to providing support, education, and hope to people affected by cancer. The organization’s services are available free of charge through a network of professionally led, community-based centers, hospitals, and community oncology practices, as well as online.

    As you go through your treatment journey, it’s important to seek emotional support for your wellbeing. There are resources and community groups available to help. You can also seek help by calling us at 1-888-793-9355.

  • CancerCare®

    Founded in 1944, CancerCare is a national organization providing free professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. The organization's comprehensive services include counseling and support groups over the phone, online, and in person; educational workshops; publications; and financial and copayment assistance. All CancerCare services are provided by oncology social workers and worldleading cancer experts.

    Connect with the appropriate groups to help with counseling, financial assistance, and community programs.

  • Lung Cancer Alliance®

    Lung Cancer Alliance (LCA) is the leading and highest rated nonprofit organization dedicated to fighting lung cancer in the nation. Since 1995, they have played a critical role in every major advance – changing how we support, talk about, detect and treat the disease – and turning those impacted into survivors. Their mission is saving lives and advancing research by empowering those living with and at risk for lung cancer.

    Find lung cancer support services from LCA, including support groups and legal and professional resources. The new LCA Unite app connects you with lung cancer survivors, tracks side effects of your medications and treatments, and identifies support groups, events, and nearby medical centers.

  • LUNGevity®

    LUNGevity is focused on changing outcomes for people living with lung cancer through research, education, and support. LUNGevity strategically funds a robust portfolio of translational research to find lung cancer early and treat it more effectively. The organization also provides a community of empowerment, support, and hope for everyone affected by lung cancer through its extensive educational resources, online peertopeer support, and inperson survivorship programs.

    Connect with other people who have lung cancer, caregivers, and families through the Lung Cancer Support Community message boards. LUNGevity also offers oneonone mentoring programs, as part of its LifeLine Program. Learn more and start connecting.

ADVOCACY

  • American Lung Association®/
    LUNG FORCE

    The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research. The Lung Association is committed to defeating lung cancer and supporting those affected by it. Through our strategic cause initiative, LUNG FORCE, we have three priorities: 1) Make lung cancer a cause that people care about—and act on; 2) Educate and empower patients and healthcare providers; and 3) Raise critical funds for lung cancer research.

    Learn more about LUNG FORCE and how you can get involved by sharing your story, donating and raising funds for lung cancer research and programming, and supporting and advocating for those affected by lung cancer.

  • Cancer Support Community®

    The Cancer Support Community (CSC) is a global nonprofit dedicated to providing support, education, and hope to people affected by cancer. The organization’s services are available free of charge through a network of professionally led, communitybased centers, hospitals, and community oncology practices, as well as online.

    The CSC promotes fundraising efforts, education, and community events to help raise awareness of the lung cancer community. Learn about the ways you can get involved.

  • Lung Cancer Alliance®

    Lung Cancer Alliance (LCA) is the leading and highest rated nonprofit organization dedicated to fighting lung cancer in the nation. Since 1995, they have played a critical role in every major advance – changing how we support, talk about, detect and treat the disease – and turning those impacted into survivors. Their mission is saving lives and advancing research by empowering those living with and at risk for lung cancer.

    Learn how you can get involved in the lung cancer community and how you can impact policies that affect lung cancer research.

    You can also raise awareness about lung cancer through “Shine A Light” programs throughout the country. Find out how you can get involved or host your own event.

  • LUNGevity®

    LUNGevity is focused on changing outcomes for people living with lung cancer through research, education, and support. LUNGevity strategically funds a robust portfolio of translational research to find lung cancer early and treat it more effectively. The organization also provides a community of empowerment, support, and hope for everyone affected by lung cancer through its extensive educational resources, online peertopeer support, and inperson survivorship programs.

    It’s easy to become an advocate for lung cancer research. Request an advocacy toolkit from LUNGevity, which will give you all the information you need to make a difference in the lung cancer community.

FINANCIAL ASSISTANCE AND TRANSPORTATION

  • CancerCare®

    Founded in 1944, CancerCare is a national organization providing free professional support services and information to help people manage the emotional, practical, and financial challenges of cancer. The organization’s comprehensive services include counseling and support groups over the phone, online, and in person; educational workshops; publications; and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

    CancerCare provides limited financial assistance to people affected by cancer. As a nonprofit organization, funding depends on the sources of support at any given time. If CancerCare does not currently have funding to assist you, its professional oncology social workers will always work to refer you to other financial assistance resources.

  • LUNGevity®

    LUNGevity is focused on changing outcomes for people living with lung cancer through research, education, and support. LUNGevity strategically funds a robust portfolio of translational research to find lung cancer early and treat it more effectively. The organization also provides a community of empowerment, support, and hope for everyone affected by lung cancer through its extensive educational resources, online peertopeer support, and inperson survivorship programs.

    Learn about the more practical aspects of living with lung cancer, including insurance, financial information, and benefits.

WELLNESS AND NUTRITION

  • LIVESTRONG Foundation

    LIVESTRONG’s mission is to improve the lives of people affected by cancer now. Since 1997, the organization has helped people who have cancer, survivors, and caregivers with their practical, physical, and emotional needs through the foundation’s cancer support services. Their voices shape the programs and partnerships and push the foundation to find new and innovative solutions to the daytoday challenges they face. At LIVESTRONG, people who have cancer come first, and its community of bold and brave survivors, advocates, and leaders is what drives the foundation to fight harder each day to transform how cancer care is delivered.

    LIVESTRONG offers programs at YMCA locations around the country. The free, 12week program, designed to help cancer survivors improve their strength and quality of life, is available in more than 400 locations. Find a program near you.

This information has been provided by the listed organizations, and Lilly is not responsible for the content. Its use on this site is not intended to serve as an endorsement of the listed organizations.

All thirdparty organization names and other trademarks are the property of their respective trademark owners. Those trademark owners are not affiliated with Lilly and they do not sponsor or endorse this material.

Important Safety Information
FOR CYRAMZA

What is the most important information I should know about CYRAMZA?

WARNING: SEVERE BLEEDING, TEARS IN THE STOMACH OR BOWEL WALL, AND DIFFICULTY IN WOUND HEALING

Severe bleeding has occurred with CYRAMZA. These events are sometimes fatal. Tell your doctor right away if you have bleeding or symptoms of bleeding, including lightheadedness. Your treatment will have to be permanently stopped if severe bleeding occurs.

Tears in the stomach or bowel wall may occur with CYRAMZA. These events are sometimes fatal. Tell your doctor if you have severe diarrhea, vomiting, or severe abdominal pain. Your treatment will have to be permanently stopped if this occurs.

Wounds may have difficulty healing with drugs like CYRAMZA. Tell your doctor if you have a wound that doesn’t heal properly. If you develop a wound that won’t heal during treatment, your doctor will stop CYRAMZA until the wound is fully healed. Also tell your doctor if you have planned surgery, as CYRAMZA treatment should be interrupted prior to surgery. Your doctor may restart CYRAMZA after your surgical wound has healed.

  • Strokes, ministrokes, blood clots, and heart attacks have occurred in clinical trials with CYRAMZA. These events are sometimes fatal. Your treatment will have to be permanently stopped if these events occur.
  • Severe high blood pressure has occurred with CYRAMZA treatment. Your doctor will monitor your blood pressure every 2 weeks or more throughout treatment and may adjust, interrupt, or permanently stop treatment depending on the results. Tell your doctor if your blood pressure is high or if you have symptoms of high blood pressure, including severe headache or lightheadedness, or neurologic symptoms such as confusion, changes in your vision, or seizure.
  • Infusion reactions related to injecting CYRAMZA have occurred. Most of these reactions happened during or after the first or second CYRAMZA infusion. Signs and symptoms of infusion reactions include shaking or stiffness of the body, back pain or spasms, chest pain or tightness, chills, flushing, difficulty breathing, wheezing, becoming blue due to lack of oxygen, and tingling or numbness of the skin. In severe cases, rapid heartbeat, low blood pressure, and severe trouble breathing may occur. Your healthcare team will monitor you for these side effects. In the case of a severe infusion reaction, your CYRAMZA treatment will be immediately and permanently stopped.
  • CYRAMZA may worsen certain types of liver disease. Tell your doctor if you have or have had liver disease or other liver problems.
  • RPLS (reversible posterior leukoencephalopathy syndrome), a very rare but serious brain disorder, has been reported in clinical trials with CYRAMZA. Signs and symptoms of RPLS may include headache, seizures, visual changes, and changes in mental function. These symptoms usually stop or improve within days, but some patients can experience continuing changes in mental function or death.
  • Too much protein in the urine (proteinuria) has been reported in clinical trials with CYRAMZA. This may be a sign of kidney damage. Your doctor will monitor your urine protein levels during treatment. If you develop protein in your urine, your doctor may interrupt your treatment and decrease your dose of CYRAMZA. In severe cases your treatment will have to be permanently stopped.
  • Thyroid gland problems have been reported in clinical trials with CYRAMZA. Your doctor will do blood tests to monitor your thyroid gland function during treatment.
  • CYRAMZA can harm your unborn baby. You should avoid getting pregnant, and use adequate contraception while receiving CYRAMZA and for at least 3 months after stopping CYRAMZA.

What are the most common side effects of CYRAMZA?

  • The most common side effects reported in patients treated with CYRAMZA when given in combination with docetaxel were low white blood cell count; tiredness; mouth sores and swelling in the lining of the mouth; nosebleeds; low white blood cell count with fever; swelling in the arms, legs, hands, or feet; low platelet count; increased production of tears; and high blood pressure. The most common serious adverse events with CYRAMZA plus docetaxel were low white blood cell count with fever, pneumonia, and low white blood cell count. Treatment to increase white blood cell count called granulocyte colonystimulating factors was given to 42% of CYRAMZA plus docetaxeltreated patients and 37% of patients who received placebo plus docetaxel.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/safety/medwatch or call 1800FDA1088.

What should I tell my doctor before receiving treatment with CYRAMZA?

Before you receive CYRAMZA, tell your doctor if you:

  • Have had or are at high risk for strokes or heart attack.
  • Have high blood pressure or have blood pressure problems.
  • Are planning to have surgery of any kind.
  • Have or have had liver problems, including liver cirrhosis or other diseases of the liver.
  • Are pregnant or may be pregnant: CYRAMZA may harm your unborn baby. You should avoid getting pregnant, and use adequate contraception while receiving CYRAMZA and for at least 3 months after stopping CYRAMZA.
  • Are breastfeeding: your doctor will tell you to stop breastfeeding during treatment.

Tell your doctor about all the medications you are taking, including prescription and over-the-counter medications.

How is CYRAMZA given?

  • CYRAMZA is slowly infused (injected) into your vein. The infusion will last about 60 minutes. You will usually receive CYRAMZA once every 3 weeks prior to docetaxel.
  • Your doctor will also give additional medication(s) prior to your CYRAMZA infusion to address potential side effects.

CYRAMZA is available by prescription only.

Please see full Prescribing InformationPrescribing Information for additional information about CYRAMZA, including Boxed Warnings for severe bleeding, tears in the stomach or bowel wall, and difficulty in wound healing.

RB-L CON ISI 02NOV2015

CYRAMZA is used with a chemotherapy called docetaxel to treat metastatic non-small cell lung cancer (NSCLC) in patients whose cancer has progressed after being treated with other initial types of chemotherapy. Patients who have tumors with epidermal growth factor receptor (EGFR) or anaplastic lymphoma kinase (ALK) gene changes should have disease progression on a therapy that targets these gene changes prior to receiving CYRAMZA.

By calling this number, you’ll have access to a healthcare professional who can provide additional information similar to what you can find on this website. The toll-free number is a service provided by Eli Lilly and Company and is not intended to replace the advice of your healthcare team.

If you have a medical emergency, you should immediately call 911 (or your local emergency services number). If you are seeking medical advice, you should direct those questions to your healthcare team. Your own healthcare team is the best source of information regarding your health.

Indication

CYRAMZA is used with a chemotherapy called docetaxel to treat metastatic non-small cell lung cancer (NSCLC) in patients whose cancer has progressed after being treated with other initial types of chemotherapy. Patients who have tumors with epidermal growth factor receptor (EGFR) or anaplastic lymphoma kinase (ALK) gene changes should have disease progression on a therapy that targets these gene changes prior to receiving CYRAMZA.

Important Safety Information
FOR CYRAMZA

What is the most important information I should know about CYRAMZA?

WARNING: SEVERE BLEEDING, TEARS IN THE STOMACH OR BOWEL WALL, AND DIFFICULTY IN WOUND HEALING

Severe bleeding has occurred with CYRAMZA. These events are sometimes fatal. Tell your doctor right away if you have bleeding or symptoms of bleeding, including lightheadedness. Your treatment will have to be permanently stopped if severe bleeding occurs.

Tears in the stomach or bowel wall may occur with CYRAMZA. These events are sometimes fatal. Tell your doctor if you have severe diarrhea, vomiting, or severe abdominal pain. Your treatment will have to be permanently stopped if this occurs.

Wounds may have difficulty healing with drugs like CYRAMZA. Tell your doctor if you have a wound that doesn’t heal properly. If you develop a wound that won’t heal during treatment, your doctor will stop CYRAMZA until the wound is fully healed. Also tell your doctor if you have planned surgery, as CYRAMZA treatment should be interrupted prior to surgery. Your doctor may restart CYRAMZA after your surgical wound has healed.

  • Strokes, ministrokes, blood clots, and heart attacks have occurred in clinical trials with CYRAMZA. These events are sometimes fatal. Your treatment will have to be permanently stopped if these events occur.
  • Severe high blood pressure has occurred with CYRAMZA treatment. Your doctor will monitor your blood pressure every 2 weeks or more throughout treatment and may adjust, interrupt, or permanently stop treatment depending on the results. Tell your doctor if your blood pressure is high or if you have symptoms of high blood pressure, including severe headache or lightheadedness, or neurologic symptoms such as confusion, changes in your vision, or seizure.
  • Infusion reactions related to injecting CYRAMZA have occurred. Most of these reactions happened during or after the first or second CYRAMZA infusion. Signs and symptoms of infusion reactions include shaking or stiffness of the body, back pain or spasms, chest pain or tightness, chills, flushing, difficulty breathing, wheezing, becoming blue due to lack of oxygen, and tingling or numbness of the skin. In severe cases, rapid heartbeat, low blood pressure, and severe trouble breathing may occur. Your healthcare team will monitor you for these side effects. In the case of a severe infusion reaction, your CYRAMZA treatment will be immediately and permanently stopped.
  • CYRAMZA may worsen certain types of liver disease. Tell your doctor if you have or have had liver disease or other liver problems.
  • RPLS (reversible posterior leukoencephalopathy syndrome), a very rare but serious brain disorder, has been reported in clinical trials with CYRAMZA. Signs and symptoms of RPLS may include headache, seizures, visual changes, and changes in mental function. These symptoms usually stop or improve within days, but some patients can experience continuing changes in mental function or death.
  • Too much protein in the urine (proteinuria) has been reported in clinical trials with CYRAMZA. This may be a sign of kidney damage. Your doctor will monitor your urine protein levels during treatment. If you develop protein in your urine, your doctor may interrupt your treatment and decrease your dose of CYRAMZA. In severe cases your treatment will have to be permanently stopped.
  • Thyroid gland problems have been reported in clinical trials with CYRAMZA. Your doctor will do blood tests to monitor your thyroid gland function during treatment.
  • CYRAMZA can harm your unborn baby. You should avoid getting pregnant, and use adequate contraception while receiving CYRAMZA and for at least 3 months after stopping CYRAMZA.

What are the most common side effects of CYRAMZA?

  • The most common side effects reported in patients treated with CYRAMZA when given in combination with docetaxel were low white blood cell count; tiredness; mouth sores and swelling in the lining of the mouth; nosebleeds; low white blood cell count with fever; swelling in the arms, legs, hands, or feet; low platelet count; increased production of tears; and high blood pressure. The most common serious adverse events with CYRAMZA plus docetaxel were low white blood cell count with fever, pneumonia, and low white blood cell count. Treatment to increase white blood cell count called granulocyte colonystimulating factors was given to 42% of CYRAMZA plus docetaxeltreated patients and 37% of patients who received placebo plus docetaxel.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/safety/medwatch or call 1800FDA1088.

What should I tell my doctor before receiving treatment with CYRAMZA?

Before you receive CYRAMZA, tell your doctor if you:

  • Have had or are at high risk for strokes or heart attack.
  • Have high blood pressure or have blood pressure problems.
  • Are planning to have surgery of any kind.
  • Have or have had liver problems, including liver cirrhosis or other diseases of the liver.
  • Are pregnant or may be pregnant: CYRAMZA may harm your unborn baby. You should avoid getting pregnant, and use adequate contraception while receiving CYRAMZA and for at least 3 months after stopping CYRAMZA.
  • Are breastfeeding: your doctor will tell you to stop breastfeeding during treatment.

Tell your doctor about all the medications you are taking, including prescription and over-the-counter medications.

How is CYRAMZA given?

  • CYRAMZA is slowly infused (injected) into your vein. The infusion will last about 60 minutes. You will usually receive CYRAMZA once every 3 weeks prior to docetaxel.
  • Your doctor will also give additional medication(s) prior to your CYRAMZA infusion to address potential side effects.

CYRAMZA is available by prescription only.

Please see full Prescribing InformationPrescribing Information for additional information about CYRAMZA, including Boxed Warnings for severe bleeding, tears in the stomach or bowel wall, and difficulty in wound healing.

RB-L CON ISI 02NOV2015